Here We Go Again…

Just when you get a few days ahead of the game.  Well, exactly 7 weeks and 4 days ahead of the game, the game changes rules.  Sigh.

Between having an Aspie and the seizures, it sure feels like someone took parenting and changed up all the rules on me overnight.

Last week, while hubby was out of town for work, DS15 (wow, he’s getting up there) decided that the thunder and lightening from the storm were too much to sleep through and got into my bed and dozed off.  I awoke suddenly at 4:19 am to find kiddo in another grand mal seizure.  I may have never known what was happening if he had been in his own bed on the other side of the house.

The good news is that he was in a safe place and didn’t get any additional injuries from falling, etc.

The bad news is that his neurologist says that the medications and dosages that he is on should have stopped the major seizures by now and that we are running out of pharmaceutical options.  We have switched up the medicines one last time in hopes of finally getting all of this under control.

But, if it doesn’t, he may have what is referred to as, medication resistant seizures.  That’s not a good thing to have.  He would run the risk of some brain damage if he has too many seizures.  The seizures that we have seen so far also tend to be longer in duration than the standard (less than one minute) variety.  This is also another bad sign that we may not be able to get it under control through medication.

We are hopeful and praying fervently that it doesn’t come to that.  More than anything, the Mama in me wants to make this all go away (or at least be under control) so that my kiddo can live a fairly normal and happy life with whitewater rafting, camping, hiking, video games…the works.   I don’t want seizures to become a debilitating obstacle that he faces each and every day.

Life just isn’t fair, is it?

Till next time,