More fun on the homefront…

Another Hatchett Job, A Happy Brain is a Nourished BrainJust when I thought I had life under control!  LOL!  Life came aiming at us with both barrels.

As we have been titrating up my oldest’s new medicine, Lamictal, for his complex partial seizures, we got slammed with a different obstacle to life on the Autistic Spectrum.  We had just about gotten accustomed to the smaller seizures that he was having and were beginning to take them in stride.

Just a few hours after returning from a whitewater rafting trip, kiddo began having grand mal seizures.  If you are not familiar with these kinds of seizures, they are the big, obvious kind with convulsions (think epilepsy).  They are also quite scary if you have never seen one before.  Hubby had not.  Hubby was also home alone with the kids when it happened.

On a good note, we did meet some of the finest, most compassionate EMS workers in our county. They had personal experience with autistic kids and seizures and they provided good advice and many helpful resources.

So, now we are armed with additional medications (9 pills last night at bedtime, plus doses during the day), a new emergency rectal medicine (don’t 14 year old boys just panic over the thought of that one!) in case a seizure goes on too long, and more doctor visits than ever.  Yay for us!  It’s never boring around here.

Another Hatchett Job blog

Not my house, but we are bibliophiles for sure!

That being said, I have been overhauling my home, cleaning and organizing, just in case we should have to have another quick visit from EMS (doubtful, but better safe than sorry).  My goal is to be able to roll a gurney anywhere in my home if needed.

This is, however, taking loads of work as I am a clutter-bug who married a clutter-bug and had two little clutter-bugs along the way.  So, we’ll just say that it is a lot more work than anyone, myself included, ever expected it to be!

So, I do apologize for the delay in posting.   Lately, I am just consumed by the heebie-jeebies of thinking what if he had this kind of seizure on the whitewater rafting trip?  In the water?  In the boat? Yikes!  God sure watched over us with that one!

Till next time,

Your Favorite Jewelry Lady, Premier Designs Jewelry

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4 Responses to More fun on the homefront…

  1. Pamela says:

    Oh my goodness, that is scary! Thank goodness he was home with his family and not on the rafting trip.

  2. Clement Lanson says:

    New findings published in Pediatrics (Epub ahead of print) by the Kennedy Krieger Institute’s Center for Autism and Related Disorders reveal that 70 percent of children with autism spectrum disorders (ASD) who have a history of severe language delay, achieved phrase or fluent speech by age eight. This suggests that more children presenting with ASD and severe language delay at age four can be expected to make notable language gains than was previously thought. Abnormalities in communication and language are a defining feature of ASD, yet prior research into the factors predicting the age and quality of speech attainment has been limited. -

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    • Jan Hatchett says:

      Yes, delayed speech and eye contact avoidance are often used as diagnostic criteria for Autism Spectrum Disorders. However, my son is one of the high functioning kids who fell through the cracks, precisely because he didn’t “miss milestones” he just skipped them (crawling, for example) and began to walk early. He also has always been highly verbal and never lost any language skills. He has always been quite capable of “talking your ears off” and this has been an advantage in many ways as well as a severe impediment to our getting an early diagnosis. I do agree that much more research on language and delays needs to happen.

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