I feel like I have been horribly neglectful of my blog this week. For that, dear readers, I do apologize.
There is something so terribly humbling about waiting for a child to receive medical testing and results back. To know that whatever (if anything) is medically going on, is beyond your capacity to determine, is a difficult thing to accept. To say that the last two weeks or so have been stressful would be an understatement. Prayer has really been my only outlet.
Today, hubby and I carted the oldest kiddo to Macon Children’s Hospital for an EEG to determine what is causing the mysterious “episodes” that he has been experiencing (that are likely seizures, but, we don’t have proof yet). Apparently, autistic kids are very prone to having seizures in adolescence. That sounds pretty much on target for our 14 year old.
The absolute worst part of the whole ordeal was that kiddo was only allowed 4 hours of sleep last night and had to be kept (forcibly at times) awake until the test was half way over, then he could sleep. Of course, if he can’t sleep…we can’t sleep either. So, it was really a case of exhaustion times three (thank goodness, younger son got to spend the night with a good friend). Okay, strike that last part…that was the worst part for hubby and kiddo. The worst part for me was that I had to walk from the car to the testing area and back again. Wowza! My foot (the sprained part) hurt to beat the band by the time we returned to the car. Standing still is the worst part. I would have thought that a bad sprain that was a week ago might have been feeling better by now, but… I guess the 15% chance that I have a stress fracture that didn’t show up on x-ray is starting to wear on me. I guess time will tell.
Kiddo did fantastic during the test and both he and hubby had fallen asleep by the end of it. The technician thought hubby would fall out of his chair. Me and my Droid2 smartphone did remarkably well and HootSuite kept me company along with the DropWords game.
Kiddo did great during the test and the whole situation gave me a great excuse to give him a really good haircut, to boot! He hated that part!
Monday, I will take kiddo back to Macon to see our pediatric neurologist for the verdict on the testing.
Till next time,
My goodness Jan, what an ordeal for all of you.
I hope the test results are conclusive and give you the answers you have long awaited and that now the testing is over, you can begin to get some sleep.
Hugs and prayers to you all.
Natalie, yes, it would be lovely to sleep again! Plus, once this is over, I need to concentrate more on my own health and well being and not only kiddo’s. I am tired of being the spoil sport on Living Well Wednesdays that never has good news to report….
I know that waiting can be the worst part; I’m sending lots of prayers your way for the whole family. Take care!
Thanks, Ann! I actually feel better now, knowing that the test is over and that answers are forthcoming (at least I hope so)!
Oh my Jan – sending virtual hugs and will be praying for you.
You are right though, you need to do some self-care. As moms, we can’t care for others if we’re not 150%. Take care of your ankle and get some pampering time for you. Even if you just take an hour long bubble bath. Being pruny will be well worth it!!
Ivette,
I think I need to get up some parties so I can totally have some spa time. I’ve never done that, but it sounds heavenly and I would be willing to try it in the name of research! LOL!
Wow, Jan! You are a strong woman. I’ll be praying for you in the days to come.
Catherine,
I don’t know that I am all that strong. I have a lot of support from family, friends, and online friends. It helps so very much!
In addition to not being able to blog I’m sure you had trouble eating this week too. My heart goes out to you. Hopefully you’ll get some answers soon.
Thanks! Now that the testing part is over, I am eating better. Once I get through Monday, I think that things will improve!
Jan -
I am glad that the test is over – you are still in my prayers!
Thanks, Belinda, a meltdown during the test would have been a total mess. But, he was totally calm during the whole thing! I am so proud of him!
All the best with the results..don’t forget to take some “Jan time”….my prayers will be with you and the family.
Thank you, Eve. I hope to be able to post good news on Monday!